rare gi conditions
Pity, Empathy, Sympathy, Sorry, Warrior, Suffering, Sadness, Fear, and Death. These are just some of the words that are often associated with having a chronic illness or a high tech medical illness. Hey, my name is Roy George and I’m here to tell my story about surviving and thriving with a medical illness.
All my life I have struggled to know how to dress! I know it sounds funny but I always felt I didn’t quite have that fashion ‘sense’ that some of my friends in school or university naturally had.
However it has taken a rare illness (Pure Autonomic Failure), 8 years of catheters, an ileostomy, many hospital admissions and now a urostomy for me to not only dress well but want to look good and on trend!!
I began to see signs of Crohn's in 2007. I was losing weight without trying and had abdominal pain. I attributed this to poor diet.
Then the day after my 25th birthday I began to vomit with blood in it, and the abdominal pain was severe. I went to my primary care Dr and she said I had too much to drink on my birthday. I spent 4 days in bed in severe pain, still vomiting blood. I had my boyfriend Rob take me to the ER. They gave me a GI cocktail, ran a CT and did an abdominal X-Ray, they said everything was fine, I was sent home told to drink Maalox and take Tylenol.
Crohn’s disease impacted my life for years.
I was always fatigued, sometimes, listless. I was anemic. I had low albumin, which meant that my lower extremities/ankles would get swollen and I was horrified and embarrassed. I had intermittent pain which became severe during my flare ups. I didn’t want to socialize and became somewhat withdrawn. I stopped dating and avoided serious relationships. I lost my sense of self.